Craniofacial hyperhydrosis

      • Guest
        Martha Andriekus on #4108

        I am 68, 30 years ago my scalp and face began sweating, face flushed. It seems to get progressively worse and follows a pattern, scalp, face, chest, back, arms. Saw Dr. Dee Ann Glaser in Missouri, the leading experts and was diagnosed with primary craniofacial hyperhydrosis, which to me told me only what I already knew. I have tried medical strength deoderant, glycoside put on scalp at night washed off in morning, Robinal, and Botox. I have a cooling vest and the wraps for your neck.
        I simply cannot function. It begins spontaneously and with little physical exertion such as dusting. I also have gustatory sweating. In plain English, I don't think I can coexist with this much longer. Sweat actually drips off my face onto the floor. I take a shower in cool water and come out sweating. I shy from dressing in more than shorts and sleeveless shirts. The fan is on constantly. I cannot wear any make-up or cream. I did fingers coconut oil works on my skin and “soaks in” fast so it is no problem with oil stains or on furniture.
        I am very apprehensive about ETS surgery and an anesthesiologist who deals with pain management simply and emphatically said “DON'T DO IT!”
        I refuse to accept the research I have read. In a week, after waiting 3 months for the best doctor, I am seeing an endocrinologist. Too many medical conditions involving the endocrine system list excessive sweating as a symptom as well as fatigue, difficulty swallowing plus more. I have been on synthroid for 15 years and see no difference. I stopped taking the synthroid, no changes occurred, so doctor could get an accurate assessment.
        I have post-Polio syndrome, Fibromyalgia, chronic fatigue, peripheral neuropathy (not diabetic), depression, anxiety, muscle and joint pain with Rheumatoid and osteoarthritis, several MRI's have detected osteonecrosis which is not found when surgery is done, replaced total knee, total shoulder replacement followed 1 month later with a reverse shoulder replacement, arthroplasty of thumb,GERD, difficulty swallowing,Barrets esophagitis, arthritis of spine with treatment at pain center, Raynauds of feet, intolerance to cold and heat,and so on. I have had cystic ovaries bilateral (removed), dysparuni (had total hysterectomy with no change, very little hair on arms and legs (shaved legs maybe twice in life), headaches and 4 serious head injuries, orthostatic hypotension, 97.4 normal temp, cardiac ablation for over 40,000 PVC'S daily, nausea, vertigo. So, many of these are attributable to endocrine function I would be foolish not to investigate it.
        So many times specialists are only concerned with the problem at hand and do not investigate outside their parameters.
        I very simply, again, have reached the point where life is meaningless and empty.I want to grocery shopping without dripping sweat down the aisles, soaking my clothes, looking like I have a horrible sunburn and total fatigue.
        By posting here I hope to find more Craniofacial people and read about their experiences, positive and negative. For me, along with chronic pain, I feel life leaving my body just like I would imagine one with Parkinsons (which I was misdiagnosed with) and I am extremely grateful for that.
        I am overweight now but was not when this began. My medications have not changed so that is ruled out and depression and anxiety(this is questionable to me) were not factors when this began rather exist due to my medical history. To be sure it is not an imagined happening.
        I realize that plantar, palmar,and axillary hyperhydrosis are miserable but at least there are treatments available.
        I simply will not take nothing can be done for an answer and will search for help till I die. Most physicians have never seen or treated hyperhydrosis so that leaves those whose lives are being ruined to find answers.
        I hope with all my heart to hear from others with CFH and professionals.
        Martha Andriekus

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      • Keymaster
        Rohit on #4115

        Thanks for sharing this Martha!

        I am sorry that you have this condition. Unfortunately, I do not know much about CFH as of now. I will love to learn more and hopefully someone on this forum may be able to share some insights with you.

        I wish you the very best – I am sure you will find something that works for your condition sooner or later!

        R

        Reply
      • Guest
        shane on #4327

        Hi Martha!

        I too suffer craniofacial hyperhydrosis, it really messed up my life. The first few years I self-diagnosed myself as “going crazy”, “high intake of salt”, and “highly anxious”. I then tried counseling, hoping for a quick-fix drug, which did not happen. My GP prescribed OXYBUTILIN, a fantastic cure for this. Having suffered for over 50 years, I now have my life back. It is prescribed for bladder incontinence, but works brilliantly on craniofacial hyperhydosis.

        I tool 2 tablets an hour before I go out stops all my symptoms! They give NO side effects. Just take when needed, every day if needed! GET SOME. It just dries out your mouth a bit.

        -Shane

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        • Guest
          Manuel on #5552

          After reading a post on Oxybutilin I went to my doctor and told him what I'd read about craniofacial hyperhydosis. I've been experiencing facial sweating with really bad head and face sweats for years had many blood tests and nothing has been done to solve the problem.

          He gave me Propantheline Bromide 15mg to be taken three times a day. I have only had four tablets and I have hoovered right through my house dusted and surprisingly not a drop of sweat. However, I am having a dry mouth but hopefully with drinking lots of water I can cope with that.

          Reply
      • Guest
        Rhay on #4442

        It is important to know that facial sweating, or craniofacial hyperhidrosis, occurs in around 10% of people who suffer from focal hyperhidrosis.

        Although less frequent than axillary and palmar hyperhidrosis it can have a large impact on patients' lives. Our faces convey our emotions and when people see facial sweating they can often assume the sufferer is anxious or embarrassed. Wiping sweat from your brow or eyes can also become disruptive to everyday tasks.

        One of the best treatment is using antiperspirant with high aluminium content. It is good to start with a clinical strength antiperspirant e.g. Driclor or Rexona Clinical Protection (contain around 20% aluminium). These can be bought from a supermarket or over the counter at a pharmacy.

        It is best to apply them at night prior to bed since you tend to sweat less overnight and it is more efficacious. It can result in localized irritation of the skin which might limit its use on the face since the red skin can be unsightly.

        Reply
      • Guest
        William on #4685

        Craniofacial hyperhidrosis, which refers to excess sweating affecting the forehead and face, may negatively affect health-related quality of life and here are some natural therapies for craniofacial hyperhidrosis:

        Apple cider vinegar:
        Combine two teaspoons of apple cider vinegar with little honey and consume it three times a day to get rid of craniofacial hyperhidrosis.

        Aloe vera juice or diluted gel:
        This can be used both internally and externally and works by cooling the facial skin and thereby relieving facial hyperhidrosis.

        Tomato juice:
        One of my favorite. Drink a glass of tomato juice daily to give a healthy vitamin and mineral boost to your body which will in turn help in treating craniofacial hyperhidrosis. You can even apply the tomato pulp on your face to get cool the skin.

        Your diet should be rich in whole grains that provide you with B vitamins that are good for curbing perspiration. Consume lots of fresh fruits as they are rich in water and therefore they give the body a cooling effect.

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      • Guest
        Jolos on #5201

        I am 43 year old male who is just comeing to terms with the effects of craniofacial hyeprhidrosis which started in my early 20's.

        I realize I am responding a year after you posted this and have no real wisdom to add. Just felt I had to becasue the cranio facial hyperhidrosis is not so common.

        Just to say that in particular I wish I didnt have the craniofacial hyperhidrosis as opposed to in other areas as I think its a lot more harder to deal with. Its taken away almost everything in my life.

        I havent found a cure or really anything that helps (excpet the anti-perpisirants, which help a little)

        The only thing I could say to you is start reading about an overactive sympaethic nervous system and see if there any clues there. After all my research I think thats were it all stems from.

        Reply
      • Guest
        Martha Andriekus on #5228

        I posted the original post on this string. Since then I have proceeded to get worse.
        I have gone thru an appointment with an Endocrinologist at U of Michigan. I left feeling disappointed in his obstinence when it came to discussion the relationship of the endocrine system to hyperhydrosis. Because I take Synthroid that is what he got stuck on
        I read from one of you about Oxybutilin and I went thru my history and found we had tried that. However, I am so glad you found it your “savior” drug!
        I have heard apple cider vinegar can “cure” many things but have not tried that one.
        So, I have continued to read and read and put things together to make sense and have become attached to a medical dictionary to be sure I have the correct understanding of everything I read.
        In September 2017 I came home dripping wet, in tears, totally broken. I had enough and if not for my grandchildren could have easily gotten on the transport to meet my God. Instead, I called the department of dermatology at U of Michigan. After telling the treatments I had been thru they put me in touch with Thoracic surgery. In record time they procured my records and had an appointment. I was impressed by the physician, feeling complete confidence in his knowledge, experience and level of understanding.
        Within one week I would have a bilateral VAT sympathectomy at level 2. I was completely calm. Really at peace. Everyone was exceptionally committed to what they do.
        The surgery went wonderful. I had some fairly hard back and chest pain and, no one could explain this, the worst reached I have ever had in my life. I was medicated spend overnight there and thought that time remained dry!! I was happier than I have been in years. Then day 6. I made a quick trip to the grocery store for pork chops and came home on tears. I had thought I might have been developing compensatory sweating on my lower back and inner thighs but that day confirmed it and, as well, my head, face, hair were sopping wet. Thinking, c'mon
        I can except compensatory sweating on my lower back and thighs but not without making a trade! I have written to the surgeon and know I went into this with high hopes and positive thinking ready to make a trade but I guess I really drew the shortest straw for now.
        I do not put anyone at fault this was my decision and I hope there is something more to be tried. If not, at least I know that I researched, found the right team, and put my faith in God and has nothing but positive thoughts.
        What now? I have no idea. When I find out i will be back. I would not change a thing. With the body I was given i have learned to deal with many strange tho he and I guess I will continue. Yes, today I am sad.

        Reply
        • Guest
          John on #5433

          Hello Martha,

          I also suffer from Hh, mine was mainly palmar. I had ETS surgery in 2004. I consider my surgery a success, although I now suffer from compensatory sweating also. My doctor was very open with me about the risks and I believe my trade-off was worth it as my hands were dripping sweat all the time. It made it almost impossible to do anything. Anyway, the reason I replied to you is I have another treatment I would like to suggest to you, and anyone else who is desperate…marijuana. It's not a cure, but it really helps to control my sweating. I live in a medical marijuana state and was approved for my card for another reason, but my Hh was my main motivation to get evaluated. Hh is not an approved medicinal marijuana condition, but it really does help.

          I also noticed you talking about God. I am a Christian now. I had noticed that marijuana helped with my Hh when I was a teenager, before I was saved. When I got saved, I had to wrestle with this a lot because I wanted to quit marijuana. I did for a long time. My Hh symptoms became harder to deal with. I would basically just lean on the Lord to help me deal. After wrestling with it for a long time and searching the scriptures, I decided to start medicating myself again, thank God. God gave us something that can help. We could have a much longer discussion about why I believe it is not sinful to use marijuana for this condition. In the meantime you should try it and decide for yourself. You don't even have to smoke it anymore.

          Reply
      • Guest
        Jason on #5441

        The injectables like Xeonim, Botox, and Dysport are very effective and have tolerable side effects. There are other medical options, but these have lots of side effects and some patients do not tolerate these very well.

        Reply
        • Guest
          Lisa on #5656

          Hi Jason,

          What side effects had you experienced with Botox? I am thinking of undergoing the treatment.

          Regards,
          Lisa

          Reply
      • Guest
        Edie on #6509

        I was miserable until I went on warfarin for an unrelated heart issue. Huge difference. I used to work at my desk with a big fan on myself all day. I couldn't tolerate it when the temperature was over 70°s. With the warfarin i don't sweat until it's over 76°s. I haven't read about this online so I thought I thought I would share my experience here. Good luck.

        Reply
      • Guest
        marc on #6545

        hai everyone,,
        Antiperspirants aren't only for your underarms. You can also apply some of them to other areas where you sweat, like your hands and feet. Some may even be applied to the hairline.
        Don't just roll or spray on your antiperspirant/deodorant in the morning and forget about it. Also apply it at night before you go to bed — it will help keep you drier. Besides talking with your doctor, you may want to talk with a counselor or a medical social worker. Or you may find it helpful to talk with other people who have hyperhidrosis. Or maybe you can undergo into treatments that is suitable for hyperhydrosis treatment.thank you.

        Reply
      • Guest
        ravie on #6719

        hi,
        I’ve been dealing with this problem since I was still in school and overtime I realized that the problem stems from psychological factor. I get really sweat when I’m around people I am not comfortable with which makes me nervous. When I feel comfortable and try to ignore this problem, guess what, no embarrassing sweat patches! So just an advice, try to take our mind out of it and you'll do fine. And try to feel comfortable around people, stop thinking too much. Sweaty armpits are extremely embarrassing when you are a teenager; however, there are more DIY treatments plus the internet that provides excessive information about this topic Hope this helps. Cheers.

        Reply
      • Guest
        Ellaine on #7193

        RE: craniofacial hyperhidrosis

        I just found out there was such a thing. My face/forehead, scalp drip with sweat. It only stopped when I was on medication for migraines oddly enough. But do to visual side effects I can no longer take them and am sweating up a storm again. I CANT TAKE IT ANYMORE. Feels like over heating to the point of breakdown. Does anyone know of any pill form medications to treat this?

        Reply
      • Guest
        monica on #7449

        If you have excessive and embarrassing head, scalp, or facial sweating, then it is time to head off the problem. There are many options out there! Even people who sweat heavily from other body areas may find that it's their facial sweating that bothers them the most. That's because our faces are how we present ourselves to the rest of the world, and we cannot hide the effects of excessive sweating on the face. From antiperspirant products to Botox injections, there are many ways to treat head and facial sweating so you can always put your best face forward. Talk to your dermatologist or healthcare professional.

        Reply
      • Guest
        Jhesa on #7748

        If you find that your face is dripping with sweat, it is always a good idea to make an appointment with your doctor. They can help determine if your sweating is actually due to a medical condition, which could be serious. Hyperhidrosis of the head and face is really frustrating. The good news is there are a number of possible treatment options. For craniofacial hyperhidrosis, topical 2% glycopyrrolate may be considered a first-line treatment. Based on study, it has shown a 96% success rate with minimal adverse effects associated with mild skin irritation and can be applied once every two to three days.

        Reply
      • Guest
        James on #7800

        People suffering from excessive sweating that occurs in the scalp area along with the face and neck, may have other underlying health issues as well . The common health problems that causes excessive sweating are “Hormonal Imbalance” or “Diabetes”. You may consult your Doctor for proper medication.

        You may want to avoid spicy foods because these may trigger excessive sweating.

        There are also foods and methods that you may want to try that could probably help you reduce excessive sweating. You may want to apply Apple Cider Vinegar on your scalp. It is said that ACV restores the pH balance of your scalp and also controls the secretion of sweat.
        Just add warm water in 2 tablespoons of ACV then massage in to your scalp. Leave it for 30 minutes then wash it off.
        Drink lots of water and excercise.

        Reply
      • Guest
        Lisa Graves on #7804

        Hello to all… I'm a 53 year old female who has been dealing with carnival facial hh since as long as I can remember. It's so bad that coworkers over the years have covered for me while I stand in the cooler for 20 minutes. They also give me ice packs to shove into my bra…etc. Its humiliating and unbearable. Now I wear glasses to read and can't keep them from fogging up. I've just begun talking to my dr about it and am hoping some of your suggestions work for me. Just want to let you know that you are not alone in this living Hell.

        Reply
      • Guest
        Millie on #8004

        I have this problem too! In my case I have to take certain medications to stay alive. Unfortunately, as time goes by I've noticed they change how I sweat. The medications come out in my sweat and the smell is horrible and I never has this problem before. The more active I am and the hotter it is, the more I sweat the worse it is. I've had mild success applying baking soda to the sweating areas after walking my dogs but the warmer it gets, the more I sweat the less it seems to work. It's extremely depressing and I have a lot worse things I have to deal with other than this. Most people don't understand what's going on or how hard I've fought against it. People are just too happy making fun and jumping to all the wrong conclusions. So I don't socialize at all because of it.

        Reply
      • Guest
        Irvine9904 on #8135

        I have very strong hyperhidrosis on my face too and I have no idea what to do anymore, it seems nothing works for me given the fact that my body has tolerance with oxybutinin, and I feel like this is one of the worst things I could ever have in my life. I have read that Glyco is not really for hyperhidrosis, it just has a side effect that tends to reduce the sweat. It's definitely not a cure. It has its own side effects and can loose effectiveness over time. I am thinking of undergoing ETS or ELS surgery.

        Reply
      • Guest
        Alan on #8340

        I feel for all of you and have had my own battle with HH for over 30 years (I'm 53). My issues appear to be primarily caused by anxiety, although I am definitely a person who sweats excessively from spicy foods or even mild exercise. So, it is hard to tell the chicken from the egg in this case. My head can be dripping wet while my palms and underarms are completely dry. As you all know, unfortunately, that is mild comfort because everyone sees what is happening above the collar. I have had struggles with work over the years – e.g. bad sweating during important presentations – but have been able to have a successful career and mostly happy life by using a combination of a beta blocker (120 mgs of Propranolol once a day) and a benzodiazapene (0.5 mgs of klonopin – once in the morning, once in the afternoon). I would call this 80% effective. I still use social avoidance as a way to minimize discomfort. This upsets me, but I do my best. I too agree that Marijuana helps. Unfortunately, that is obviously not a solution for work, while having to drive places, or an easy path if you don't live in a weed legal state like I do. All that said, I'm still eager for a true solution and will try some of the thoughts above. Keep up the suggestions everyone, and try not to despair. I've also learned that having this kind of issue creates a corresponding super power. I am more empathetic and in tune with how others are feeling as a result of my own struggles and this has been a key to any job success as a manager of people. I hope you can pull something similarly positive out of the ordeal. All the best to each of you.

        Reply
      • Guest
        Bailey on #8477

        I am suffering from excessive sweating on forehead and hair line which makes me shy and anxious as I have this problem from so many years. I went to a dermatologist and ask her regarding this and she told me to apply aldry lotion. I did but no improvement so I went back to her. Then she prescribed 2 mg glycopyrrolate twice a day but still there is no improvement. She then told me I should undergo Botox treatment. But it is very pricey for me, I am not sure if it is covered by insurance.
        So I want to know what are the permanent way of treating facial sweating other than botox?

        Reply
      • Guest
        Carol Rutherford on #9443

        First off, thank you and I am so glad that I found this string of testimonies because I also suffer from cranial facial hyperhidrosis. After 35 years of them trying to tell me it was hormonal, I was emotional. All kinds of other issues no one seemed to help me and I was like desperate and I try to stay away from people.

        Hating to be at work for no reason, I would break out sweaty. Never went to birthday parties, never went to weddings, got to where I couldn't even guarded church anymore because I like to hug people and who likes to hug a sweaty mass!

        I watched doctor oz 1 day with a beautiful young lady who had the same problem. And she was on the show to have botox and she described her wedding how she looked absolutely gorgeous but before she took her vows she was a sopping wet mass and I just cried for her because I know exactly how that feels. So I went to a endocrinologist and she ran all sorts of tests for everything and came back and told me this is what she was sure I had I'd never heard of it before and she sent me to a dermatologist. This doctor was from Italy and I told her I came to get botox treatment and she said that they were never sure exactly where to inject the botox for cranial facial. That it was effective on under arms, on your hands or your feet and I broke down into her office and I thought I just want to die because truthfully I was so sick of living like this.

        I couldn't go on and she comforted me and said don't don't worry we've got something we can try and it was that glyco pira LGlycopyrrolate. She said I should take 2 to 6 tablets about an hour before I go anywhere and so the next morning I took 4 and I went to work and I stayed dry all day long. I could not believe it, my mouth was so dry I had to get dumb or something to keep my mouth voice cause my tongue would stick to the roof of my mouth. But I was so over the moon that I wasn't sweating it totally changed my life. I've never taken 6 at a time but I do take 4 or sometimes 5 if I'm gonna be around a bunch of people or if I just want to stay dry. And after 35 years overwhelmed. My heart goes out to each and every one of you because I used to think I was alone. God-bless you each and every one of you try taking the tablets instead of rubbing anything on you and see if this helps you there's no side effects except extreme dry mouth

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      • Guest
        Jordan on #9696

        I managed my craniofacial hyperhidrosis thru some topical agents that include aluminum chloride. There are over the counter agents such as certain dri that comes as a wipe and toss pad, or you may want prescription liquids. I prefer certain dri, I do not use it daily, as the box suggests. I just use it for a couple times a week. Around two to three times. Also, drinking a lot of water or any fluids can help reduce the excessive sweating, too. But I do not think it can do that alone if your sweating is severe. Botox injections can be very effective as well, if you have a budget.

        Reply
      • Guest
        Emily Rose on #11823

        Botox treatment for face works on the principle of blocking the nerves that causing the wrinkle. The wrinkles or frown lines on our face are caused by the muscle movement, and by blocking the nerve it essentially eliminates the capability of muscle to contract; eventually getting rid of wrinkles and fine lines.

        The best part about Botox treatment for face is that while the injection blocks certain neve, others keep performing optimally. This ensures that you are able to keep up a natural facial expression, provided the treatment is conducted by an expert surgeon.

        Reply
      • Guest
        Tina Moe on #12062

        These are the things to remember when you have craniofacial hyperhidrosis:

        1. Wash your skin regularly, especially at the end of each day. Giving your head, scalp and face daily cleanse reduces oil and dirt build-up.
        2. Avoid spicy foods. Eating peppery dishes can trigger face sweating. Cut back on meals made with lots of spices or garlic can help you avoid face sweating.
        3. Keep tabs on the times of day or situations you experience head sweating the most. This will help you identify whether factors like stress or certain activities are making you sweat more than usual.
        4. Other treatments are available for people with excessive head sweating or secondary hyperhidrosis. For more information, speak to your doctor or a professional medical adviser. They may be able to recommend treatments, medical procedures or topical antiperspirants than can minimise face sweating.
        Reply
      • Guest
        Shellie on #16719

        THANK YOU!

        Reply
      • Guest
        Juju W. on #17366

        I have described my severe, debilitating craniofacial hyperhidrosis symptoms (not knowing that there was an actual condition) to every doctor I see (gen. med., rheumatologist, ophthalmologist, dermatologist, et. al.) in hopes that someone would help me. The most I ever received from any of them was a somewhat sympathetic smile and shake of the head “no.” I have searched the internet many times, but was not using the proper search terms I suppose because I never came across CH. I prayed that God would cure this, and the next morning tried searching the internet again. Finally I found CH. He always answers my prayers. This forum has helped me know what to present to my doctor and I am extremely grateful.

        Has anyone suffered from sinus problems because of CH? When I have a full-blown episode, my nose runs profusely, I get dizzy and woozy, and I cannot breathe well. When the sweat pours into my eyes, they burn badly, and I cannot see well…and have to squeeze my eyes shut until I can wipe them (sometimes with my shirt, if I've ruined all my paper towels).

        I have curtailed my social activity a little, but still do many of the things I like to do in spite of CH for about ten years. If someone comments, snickers, or even backs away from me, I just laugh and tell them that I have severe issues with heat. Embarrassment has to take a hike. The physical misery is there in full force, but I simply, stubbornly refuse to let folks get to me. I have actually been crying in public from physical misery, and not been noticed because the sweat hides the tears, and my eyes are red anyway from salty sweat. My hair looks like I've been rained on. My husband thinks there is something seriously wrong with me physically and mentally. I think he is more embarrassed than I, especially in church.

        Well, now, because of God's gracious help, and because of people like you in this forum, I plan to begin an all-out war against this bane of my existence. THANKS and my deepest sympathy to every one of you. JW

        Reply
      • Guest
        Jerrod C on #19656

        Craniofacial hyperhidrosis, which refers to excess sweating affecting the forehead and face, may negatively affect health-related quality of life. Based on the current evidence, first-line treatments include oral and/or topical anticholinergics or intradermal botulinum toxin A. Patients who do not respond to pharmacological therapy may benefit from endoscopic thoracic sympathectomy or one of its variations. However, such surgery is often associated with high rates of troublesome and embarrassing compensatory sweating.

        Many patients should try conservative therapies (medications or topical agents) first before considering surgery. Your doctor will determine what is the best treatment method for you based on the type of hyperhidrosis you suffer from, your age, and your general medical condition.

        Reply
      • Guest
        Kessler on #22244

        It is good to start with a clinical strength antiperspirant e.g. Driclor or Rexona Clinical Protection (contain around 20% aluminium). These can be bought from a supermarket or over the counter at a pharmacy. It is best to apply them at night prior to bed since you tend to sweat less overnight and it is more efficacious. It can result in localised irritation of the skin which might limit its use on the face since the red skin can be unsightly.

        Reply
      • Guest
        Amor on #23013

        People with craniofacial hyperhidrosis tend to experience sweating on the face, head, or scalp that occurs for no apparent reason, such as heat, exercise, or anxiety. Hyperhidrosis can impact anyone and occur at any age, but people with primary hyperhidrosis tend to experience symptoms as children or after reaching puberty.

        Primary hyperhidrosis tends to cause excessive sweating that impacts both sides of the body equally. It also tends to affect one or two body regions while the rest of the body stays cool. Symptoms of primary hyperhidrosis may improve with age.

        People with craniofacial hyperhidrosis may be more sensitive to and embarrassed by their symptoms compared to other types of hyperhidrosis because it is hard to hide. The face also plays an important role in how most people present and express themselves.

        Reply
      • Guest
        Penny on #24758

        I am responding to Martha Andriekus because her post outlines my exact same issues.
        I have tried Mybetriq, Oxybutonin, & Osytrol topical. The topical heavily irritated my inner thighs, neck & area under my breasts. Mybertriq was initially too drying in my eyes, mouth, and I couldn’t see or keep my mouth hydrated. I stopped after 12 days & tried Oxtbutonin & it worked really well for about 5 days when the results were reduced approx. 50%. Since then I tried the Oxyb. every 6-8 hours with fairly good results. I am now retrying Myrbetriq. It helps but loses its effect after 5-6 hours. I see My Dr in 2 days. I will ask if he will agree to prescribe either Oxyb. Or Myrbetriq every 6 hrs (3 x daily). I will report back after that appointment.

        Reply
      • Guest
        Penny Flaherty Pitts on #24759

        I am responding to Martha Andriekus because her post outlines my exact same issues.
        I have tried Mybetriq, Oxybutonin, & Osytrol topical. The topical heavily irritated my inner thighs, neck & area under my breasts. Mybertriq was initially too drying in my eyes, mouth, and I couldn’t see or keep my mouth hydrated. I stopped after 12 days & tried Oxtbutonin & it worked really well for about 5 days when the results were reduced approx. 50%. Since then I tried the Oxyb. every 6-8 hours with fairly good results. I am now retrying Myrbetriq. It helps but loses its effect after 5-6 hours. I see My Dr in 2 days. I will ask if he will agree to prescribe either Oxyb. Or Myrbetriq every 6 hrs (3 x daily). I will report back after that appointment.

        Reply
      • Guest
        Jane Young on #25069

        Craniofacial hyperhidrosis or excessive sweating of the head and face .
        Vitamin D deficiency might be one of the causes of Craniofacial hyperhidrosis.
        Underlying health problem such as obesity, menopause, a tumor, diabetes, hyperthyroidism, gout, etc. might also be the cause of excessive sweating.

        Though in my case , I'm not sure about the cause of my Craniofacial hyperhidrosis. I have not gone to any Doctors or Specialists yet. Regardless, it has been such a source of anxiety for me.
        It's so hard for me to even put on sunscreen because it just slides right off. It's a nightmare. It's painful every time the sweat gets into my eyes because of the chemical contents of the sunscreen.

        Reply
      • Guest
        Jasonber on #25451

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      • Guest
        Jasonber on #25663

        I’m not sure where you are getting your info, but great topic. I needs to spend some time learning more or understanding more.
        Thanks for magnificent info I was looking for this info for my mission.

        Reply
      • Guest
        eimreiz parcs on #28202

        I have had craniofacial hyperhidrosis since I was a child. It runs in my family since my Father and Older Sister both have the same. My hyperhidrosis is only my head and face. It’s so severe and I suffered with this for far too long.
        I sweat from my scalp and my hair plastered to my head and sweat dripping down my face.
        I went to a doctor once, because I wanted to do a Botox. But she advised me against it.
        I had a friend who has Hyperhidrosis in her upper lip and she has undergone Botox.
        It helped only slightly for a couple of weeks. She was still sweating enough for it to be very noticeable.
        Botox is costly, and I admit I still really wanted to try and see if it will work on me.
        Is there someone who have tried Botox for their craniofacial HH? How was it for you?

        Reply
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