Hyperhidrosis makes life much harder

As a little girl, no one takes me seriously. They always think I'm exaggerating, or seeking attention. But I really am not. In fact, I say this with full-confidence. Hyperhidrosis not only ruined my social, and emotional life but even my education (in a way). I don't want to go into vivid details because you probably already know the struggles. But I'd like to point out how frustrating it is to have to shower your body, change your shirt multiple times a day.

I can't even buy specific clothing and shoes because the material sometimes irritates my armpits, hands and feet and causes a ton more sweat. I can't even walk barefoot on sand, or greet someone, or hold a hand because it's so annoying. I can't even wear a ring because my fingers swell up. Can't drive. Can't wear heels. I use plastic spoons and forks, because metal irritates me. And this is all nothing! I'd share more but I don't want to bore you.

I just really hope one day I can get this over with. Sometimes the sweat makes me want to break down and cry. Because I can't even touch myself. I can't do my hair, or paint my nails, or moisturise. I wish I could explain how it feels to force yourself to touch something so irritating but I cannot.

My Botox Experience

Good Morning!

I wanted to share my experience with Botox treatment. For YEARS I have had to deal with underarm sweating. Socially it was devastating but I learned to just “deal” with it. Financially, it was a pain! Clothes were ruined rather quickly. It was almost like if you did not wash your shirts immediately after taking them off – they would inevitably stain. I tried multiple topical products but the sweat did not stop. Frustrated I finally decided to see a dermatologist in NYC (Cornell) and spoke to the doctor about it. He kindly advised me of what treatments were available. I already was set on doing the Botox treatment (did my research online) and advised him of this. He agreed and 1 month later I FINALLY got the injections done. It has been about 3 1/2 days now and let me tell you – I am SO HAPPY with the outcome so far. It has been the best decision. I don't recall when the last time I felt “dry” during the day. I really want to just lift my arms in joy. (figuratively speaking)

My insurance approved the injections (Aetna) and I simply had to pay a $30 co-pay for the medication and my specialist doctor co-pay of $40. $70 total to get about 4+ months of Dryness??? I'll take it any day. Per the doctor – it should last about 4 months and the 2nd round should last even longer. It should end up being a once a year process. I am thrilled with the results so far.

I'd love to connect with others who are experiencing the same thing.

Best Regards,

Mark Cardona
Mind, Body, Action
www.facebook.com/MrMarkACardona

Iontophoresis changed my life

I started sweating excessively from the feet ,hands and armpits  when I was 11 years old  and the consequences of that condition has affected my performance at school  ( I was embarrassed to turn in wet test answers , so often I just didn't ), my participation in sports ,my social and my professional life .I'm sure that I don't have to go into the clammy details as those of you reading this on this website must   already know what I'm writing about .I am now 40 years old and about 5 years ago my life changed drastically for the better. I read an article about the use of Iontophoresis therapy for the treatment of excessive sweating .The article did not claim that it was  a cure for Hyperhidrosis ,but emphasized that it controlled the symptoms , the excessive sweating. I thought about it for a few days and decided to take the risk of trying something that again might not work ,as everything that I had tried  up to that point had not worked .I made the decision to buy the Idromed, iontophoresis machine , it was not cheap  but it had an 8 week money back guarantee if the treatments were not successful. I did the treatments  as prescribed , every day , it does take some time , but I do them while I'm watching tv. After 10 days of treatments I was still sweating and I was getting disappointed once again. luckily There was an excellent after sales support that convinced me to continue and that was great because two days later my hands stopped sweating – they were dry.that gave me some real hope for my feet and my armpits -they.  took a little longer to get dry but they are also now under control.I I've got o keep doing maintenance treatments once a week to stay dry ,but that is a small price to pay for keeping dry .I highly recommend iontophoresis for people who suffer from excessive sweating , who have tried a lot of solutions that haven't worked . It worked for me and it changed my life .

sweating doesn’t stop with age

it seems that I've been dealing with excessive sweating of the palms and feet my whole life ,although it started in my teens. I am now 65 years old and I still have this condition which has caused me untold problem at work and in my social life -I had  hoped that with age it would go into remission,but as of yet it has not done so . After trying practically everything except surgery , two years ago I decided to give iontophoresis a try. I had heard stories that it would be painful (electric current ,after all ! )  but it was not at all .  It took quite some time initially to feel any results,  but after six weeks of  daily therapy with my idromed 5 PS iontophoresis machine  ,I finally had dry hands and feet! I must do maintenance therapy three times a week  ,but that is a small price to pay for being able to meet people with a dry handshake and not having to change socks and sometimes shoes three or four times a day.I would definitely recommend iontophoresis to anyone suffering from hyperhidrosis.

Living with Hyperhidrosis

I am 15 years old, 16 in may (2016), female, I am from west London and I am obviously a student. I have had hyperhidrosis since was about 9 (about 7 years). In September 2014 or even further back, I can't really remember, I was finally, after 5 years of trying, referred to Chelsea and Westminster hospital in London. My GP wouldn't believe me that it was bad and this is why it took this long. I thought that when I was referred that everything was going to be fine, I was going to get treatment and it was an easy road. I was very wrong. They took my blood to see if I had a thyroid problem that was causing it. I didn't. I then met with a doctor who said the treatment (iontophoresis) wasn't available to under 16's. I was so upset but I didn't give up. We (me and my parents) kept asking when it's going to become available to children, because thats what they said would happen. Finally, after 14 months, my mum got a call to ask what dates I would be having the treatment, so in November 2015 I started my treatment and ended in December 2015. After finishing we couldn't buy the machine until February but I now have it and it's working well.

Before the treatment I was so embarrassed to even be around people. I didn't even want to hold my own mother's hand, and I was scared to touch people incase they said ew, which they did.

I am so happy with myself now and I definitely recommend iontophoresis if you can afford the machine and it works for you.

My story

Hi.  Just thought I would share my story for anyone out there going through hyperhidrosis.
I'm 32, male, live in Yorkshire in the UK, and from the age of about eight I can remember having extremely sweaty hands and feet.  I don't recall this being too major an issue in primary school, but secondary school was very different.  The embarrassment, humiliation and name-calling (once fellow pupils found out about it) was terrible, and had a big impact on me mentally, emotionally and socially.
By the time I was fifteen I'd had enough, and sought help from my GP.  I was prescribed a couple of different aluminium-based solutions (including Driclor aka Drysol) but these had no apparent effect.  I then saw a dermatologist who told me that there was nothing they could do (which I have since discovered was incorrect but hey ho), and so she referred me to a vascular surgeon.  Seeing surgery therefore as my last resort (of course it wasn't – in reality there was at least iontophoresis and medications to try, but I was never informed of these options by the dermatologist), I had ETS in 1999 and 2000, and then a lumbar sympathectomy in 2001.
What I am left with since then has been very dry hands and feet, but also with the operations have come many side-effects.  One problem if that the operations also stop you from sweating in other areas such as the underarms and face, making keeping cool extremely difficult.  Then there is the compensatory sweating (for me it affects my back, stomach, chest, sides and legs).  I've also had issues with low energy, lethargy, depression and dizziness, all of which I believe are effects from the nerves been severed.
So, my advice to anyone going through hyperhidrosis of the hands and / or feet (or even other areas like the underarms) would be to avoid surgery.  Though it does have benefits clearly, personally I find the negatives to far outweigh the positives.
More now than ever before I think there are some great non-surgical options out there, it's just a case of finding them.
In terms of coping with post-ETS side-effects, I just try to cover up as much as possible (for example wearing a tank top under a shirt to stop the CS showing through to the back as much as possible for example), and during the summer months I often use a prescription-strength anti-perspirant on my worst area (the back).  I also have acupuncture and do tai chi for the nerve damage, and just try to live a healthy / healthier lifestyle really.
Good luck to anyone experiencing hyperhidrosis, and don't give up hope.

JR31

Secret Clinical Strength

I recently received this email from one of the readers of this blog and wanted to share it with others. Thanks so much for sharing “D”!

She found the Secret Clinical Strength Gel helpful for excessive sweat on her face, and seems like it works! Good going for her and I do hope it offers a long term solution without much side effects.

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Hi Rohit,

Thanks for your very useful resource.I just wanted to share my positive experience with a product not mentioned on your antiperspirant list.

It is called Secret Clinical Strength and is available at most pharmacies in the US and UK (also available at Amazon). I have found it to be very good. It contains aluminum zirconium octachlorohedrex gly at 20%. It's reasonably priced.

The best form is the clear gel which is also hypoallergenic and unscented so great for sensitive skin. I use it on my face ( Not sure how safe that is in the long term, but I'm quite desperate). Although it is said to be for women, the fact that it's unscented makes it suitable for men too.

Thanks again for your excellent website!

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Has anyone else have good/back experience with Secret Clinical Strength Antiperspirant? Please share if you can.

Oxytrol works for me!

I started suffering from generalized idiopathic hyperhidrosis about 2 years ago.  It tends to be situational and not continuous but since my job involves meeting with enterprise executives who are customers of the very large company I work for, it was a problem for me.  Nothing like a combination of a suit jacket, a warm conference room and lunch to cause profuse and embarrassing sweating!

I have been researching what to do about it for quite a while and came to the conclusion that an anticholinergic was most likely to work.  I discovered, much to my delight, that at least here in the USA Oxytrol was available over the counter.  Oxytrol is an Oxybutynin patch.  It delivers a steady dose of Oxybutynin (anticholinergic) over a period of 4 days.  I tried this for the first time this last Thursday, when I was attending an important meeting.  It worked very well!

Oxytrol is actually designed for women with OAB (Over Active Bladder).  The FDA is actually trying to discourage men from using it because it could mask prostate issues, but they considered the risk so small that they elected to make it over the counter regardless.

At any rate I thought you or your members might be very interested.  I do not have any connection to the company that manufactures Oxytrol nor to anything related.

 

– Michael

Take what you can, but don’t let it define

I've had HH for as long as I can remember (more accurately as long as I can remember being in school) and I've known what its called for the last 4-5 years. Palmoplantar if I'm not mistaken (maybe focal). I've researched it for the last 3 years, and have tried to combat it. I could drone on about all of this but I'm sure I'd just be repeating aspects of my journey that are PAINFULLY similar to all of yours. One thing I will highlight is my day, the day all of us have had I'm sure: the day you realise something's up. It came suddenly when one of my sisters said “no my hands barely sweat”. Then I did some digging and voila! I came across a word that would stick with me for life: Hyperhidrosis. Doesn't it suck when it has a name?

I've always had an awkward charm and to most I know its just my most prevalent and endearing trait. While I'll admit in small part it is an extension of my love of tendency to be funny at any opportunity, the awkward aspect of my personality comes form my apprehension to be fully engaged with regular social interactions, and constantly avoiding any tactile situations. I mean what better way to avoid embarrassment (and its wet mistress) than by making all your awkwardness seem like a joke 😉 . All in all I content with keeping my charm the way it was and hiding my HH with great care, casually looking for an effective method of controlling it. Girls? Relationships? Those are far off in the future, when I've mastered it (or when I've cured it). Just focus on friends and maybe just flirt very rarely with girls. All good right?

Relatively uncomplicated…until she came around. Like many of the greatest discoveries, I made this one by accident. It was the era of the Blackberry craze and I wanted to see what the buzz was. I was on FB and saw a girl post her pin to her profile; a profile which showed me she thought like I did…a lot. I ask you to imagine a couple years of lengthy personal conversations and fun outings between us. I say this so I can relate back to HH. I'm not afraid to say that I fell for her the first time I saw her (corny as that sounds). You can imagine my surprise when I found out she likes me too. She texts me she likes me and I'm prepared to text back that I like her…then I look down at the hands I'm using to text. I pause. I shake a little. I laugh nervously. It was like getting a reality check. I am nowhere NEAR ready to share this with someone. Let alone her. So I make up some nonsense and cliché out big time: “it's complicated”. We fight over this for like a day and then presto, it becomes something we don't talk about. We go back to texting daily and just being not-quite-friends not-quite-more. I resolve to try a little harder in looking for a means to control my HH. It'll all work out fine, right?

To say “slipped through my fingers” would be an understatement. I had gotten the courage to at least try and reignite the possibility of getting together with her. My plan was to just straight up tell her I liked her and that we were good together. Somewhere down the line I would tell her about my HH, though to be honest I literally thought I was good enough at hiding it that I'd never have to. Then out of the blue it happened; she says to me “I'm in a relationship”. Literally the worst pain I've ever felt. From there I let my glitched-out parasympathetic nervous system go into overdrive as the emotions nudged the sweat forward and I was left feigning interest in her new man to seem supportive. This is what was bound to happen, right?

Rough patch – best way I can describe the next couple months (more specifically the last 5 months before the current).  I had come into my own in the self-pity game. I had resolved that if I didn't have HH that we'd be together. Then I went further back and thought that if I didn't have it my life would be utterly uncomplicated. Then I had a moment of pessimistic realization. There is no alt for me. This is WHO I AM. I then came to the decision to put painstaking effort into fighting my HH and minimize the damage it can do in my life. Lone crusader against this evil. Righteous anger, right?

Then I put the melodrama aside for all our sakes. I came to realize I couldn't be more wrong. Sure maybe I wouldn't have buckled when asking her out, and maybe I would be more social and tactile with people. But there is no reset button and no alternative look at life. I'm who I am, and I've come to like who I am. Then it hit me. HH doesn't define me. I'm not the sum of my problems. I came across a blog (http://sweatygirldiaries.blogspot.co.uk/) and saw a new way of thinking. I came to realize that I owed a lot of my favourite aspects of myself to what I'd gone through with HH. Now I'm not saying it is some great blessing in disguise in a Peter Parker-esque “my gift my curse” speech, but I choose to take what good I can from it. That I know is right! No question.

And now…I'm completely different. I have an entire family who now know of my HH and are unbelievably supportive. I have a routine to help control my condition. I have a somewhat detailed knowledge of my own body chemistry. I have an extremely successful iontophoresis set up at home. True, heartbreak like that which I got with her never really goes completely, but I'm learning to cope. I realise I didn't bring her into this because I wasn't ready to let someone else in on something in my life which I myself controlled so poorly. It wasn't fair to her. If nothing else I realised my capacity for caring for others. Her happiness will always be paramount to me and I'm glad it was maintained. And then there's this story. One which the older me would have found inconceivable to share so publicly. I have a new lease on my definition of life.

EA